10 YEAR OLD MALE WITH APRAXIA, AUTISM AND SEIZURE DISORDERS. LAST SEIZURE WAS DURING FIRST WEEK ON NV AND CHILD REMAINS SEIZURE FREE TO THIS DAY GOING ON 10 MONTHS AS OF OCTOBER 2010, 3 MONTHS NOW OFF MEDICATION. PRIOR TO NV HE ON 2 MEDICATIONS AND SCHEDULED FOR A PARTIAL LOBOTOMY AT KENNEDY KRIEGER …CHILD NEVER NEEDED NOR HAD THE SURGERY ONCE ON NV. IN ADDITION TO ELIMINATION OF SEIZURES AND INCREASES TO SPEECH AND LANGUAGE, AND NO MORE OF SON COMPLAINING HIS HEAD HURTS.
Note from mom about 4 months into putting her son on NV; “I was told about it back in January and of course I was thinking it was like a million other products out there that parents with special needs children try. However, being skeptical I did order it and started my son (9yrs) on it once a day (2 scoops). Shortly after he started it I noticed very slight differences. He seemed to have a healthy look or glow to him; his temper seemed to have leveled off instead of extreme highs and lows. My son seemed to be grasping or understanding language a bit more too. The most drastic of all the changes is that as of today my son remains seizure free!! My son has been having uncontrolled seizures for three years now despite whatever medications we have tried. He has gone through many types of testing procedures and we were on the road to have a surgery consult to remove the portion of his right temporal lobe where his seizures were occurring.
Today my son is drinking NV twice a day (4 scoops) and is seizure free going on 15 weeks! We have dropped his seizure medications twice now and still remain seizure free. I remain optimistic that when we hit the six months marker my son’s neurologist will help us to slowly remove all seizure medications. I am in awe of NV and what it has done for our family.”
Note from mom right after 6 months seizure free from NV “I am very skeptical about most things. I do think out of the box but for us we do not do any special diets or minerals. With that being said there is not one thing in NV that would be harmful so I put (my then 9 year old son) on it back on Jan. 2010. My son is very verbal but struggles with speech/Lang and a whole other host of issues. My biggest concern back in Jan. was my 9 year old’s uncontrolled seizures, which were ever two weeks at best. As of last week Matthew has hit SIX months seizure free!!!! And I type that with tears in my eyes. So if you ask me is it worth trying NV I would have to say hell ya!!!!
6 AND A HALF YEAR OLD WITH SEVERE AUTISM, MENTAL RETARDATION, AND SEIZURES. CHILD WAS PREVIOUS ON A MEDICATION FOR SEIZURES AND ANOTHER FOR SLEEP. DUE TO NV BOTH MEDICATION HAVE BEEN ELIMINATED.
PROFESSIONALS THAT WORK WITH THE CHILD HAVE NOTED CHANGES. IN ADDITION TO ELIMINATION OF MEDICATIONS, IMPROVEMENTS IN MOTOR PLANNING, MUSCLE TONE, AND MOOD ARE NOTED.
Parent notes “The biggest thing for us was that we stopped giving Logan the Topomax we’d been giving him for seizures and the Clonadine (sp?) we’d give him to aid his sleep. NV has completely controlled his seizures and his sleep is better than it’s ever been. Once we took him off the other meds his eyes began to twinkle again. We had just not noticed how much the meds had “dulled” him. He has returned to doing things like playing with certain toys, babbling and playing catch that he used to do before the meds but had given up…He exhibited much more ability to entertain himself and was more patient when he needed something.”
14 YEARS OLD WITH AUTISM, APRAXIA WITH SEIZURES. TEEN WAS ON SEIZURE MEDICATION FOR 9 YEARS TO TRY TO PREVENT HIS GRAND MAL SEIZURES.
PRIOR TO NV HE HAD NEVER HAD A NORMAL EEG. SINCE NV TEEN HAS BEEN SEIZURE FREE GOING ON 8 MONTHS AND OFF ALL SEIZURE MEDICATION. IN ADDITION, FOR THE FIRST TIME IN HIS LIFE, SINCE NV TEEN NOW HAS A NORMAL EEG. NUMEROUS OTHER IMPROVEMENTS ARE NOTED (SEE NOTE FROM PARENT BELOW WHICH WAS FROM RIGHT BEFORE MEDICATION WAS STOPPED) IMPORTANT TO NOTE: 14 YEAR OLD’S 10 YEAR OLD SISTER ALSO DIAGNOSED WITH AUTISM, APRAXIA AND SEIZURES HAS SIMILAR AND OTHER IMPROVEMENTS ON NV (SEE BELOW).
Note from mother “Hi Everyone, My children have had an incredible week! First off, (my 14 year old son) will be off his seizure medication Tegretol in 3 weeks! He has been on this med. for 9 years.
I am thrilled for him to be off of medication since I am not a BIG fan of any meds. and their host of side effects. This week he went on a school field trip to ____ Marine _____. He was with his teacher and speech therapist most of time. They were ecstatic that he was talking the whole day, saying “what’s that” and pointing,”come over here”
“where we going”. He even responded to something that was said over the loud speaker!! I spoke to the neurologist about NV when both of my children were on it for 3 wks already, and he told me to keep giving it to them, because he saw a change in them from the previous
apt I also noticed that my 14 year old son
does multitask more. For example, he used to drink something and sit or stand in one place, but now he walks around with drinks or finger foods, also holding something in one hand and throwing something out with the other. He used to put down the one thing first and then do the 2nd thing. I think this is another positive result. Also my 10 year old daughter can now hold her cereal bowl up in the air and eat her cereal while watching TV! ( well the TV part is not that great but they have to have some vices too!) Also they had their Special Olympic horseback riding lesson yesterday and it was the first day that the instructor was teaching them left and right turns. Well, (my 10 year old daughter) was pulling on the correct reins when the instructor called out and I didn’t even know that she knew her left from her right!! (my 14 year old son) did this as well! They have been on NV since February and it’s not that I see something new every day but it’s consistent and they are definitely changing. We are even seeing improvements in the toileting area which is HUGE (you saw how old they
are) in cooperation and success. My daughter had a terrible sleep issue last year and it lasted about 8 months, she was waking up to 5 times a night, we were sleeping in there, it was a nightmare, finally her neuro. dr. put her on Clonidine, which is a blood pressure med.
that they use on kids because 1. they don’t like to use sedatives on kids and 2. the main side effect is sleep. So we did that and behavioral. Well, we got her to the point of only waking up 1 time a night and this lasted for a couple of months, so I told the Dr. that I wanted her off the Clonidine, and I was just going to accept the fact that she (and I) would be waking up every night. Well guess what, back in February when she started NV, she slept through the night after being on it 1 DAY!!! My husband and I were in shock, she is still sleeping through the night.”
Lisa Geng, President
The Cherab Foundation
“Help give our cherubs a smile and a voice”